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5-Ones ProjectコミュのSurvey (アンケート)

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Facebook上の5-Ones Projectのコミュニティを見つけた、Neglected Diseasesに関する調査を行っているスイスのSabrina Kammerer, PhDという方からアンケートの協力を頼まれました。

お時間のある方(後日、時間を見つけて日本語訳も追加します・・・)は、以下の質問にYes, Noで答えて、Sabrina Kammerer, PhD (sabrina_kammerer@hotmail.com) まで回答をぜひ送ってください。

こうして少しずつ、インターネットを利用して小さな力が協力し合って問題を少しでも解決していけるところに、このような活動を続けていく意義があるのでないでしょうか・・・。

以下、質問です。
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JUST ANSWER yes or no TO THE FOLLOWING QUESTIONS, PLEASE BE HONEST AND SPONTANEOUS !
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1.do you know what is a neglected disease ?
2.do you know what is an orphan disease or a rare disease ?
3.are you working in the field of neglected diseases ?
4.are you concerned by a neglected disease (personally, in your family or member of a fondation/association ...)
5.are you working in the field of rare diseases ?
6.are you concerned by a rare disease (personally, in your family or member of a fondation/association ...)
7.do you think that the awareness for the neglected diseases has to be raised ?
8.do you think that the awareness for the rare diseases has to be raised ?
9.do you think that a better awareness for a disease can hasten the research for treatment or cure ?
10.do you think that a better awareness for a disease can contribute to provide better support to the patients ?
11.do you think that the communication for the rare and for the neglected diseases can be common (answer only if you answered yes to the two first questions) ?
12.do you think that the difficulties faced by the rare diseases and the neglected diseases are similar (answer only if you answered yes to the two first questions) ?
13.Do you think that the situation is more difficult for the neglected diseases than for the rare diseases ?
14.Do you think that the situation is more difficult for the rare diseases than for the neglected diseases ?
15.do you think that the rare diseases should be more advertised ?
16.do you think that the neglected diseases should be more advertised ?
17.do you use internet as an information resource for the neglected diseases ?
18.if yes, are you globally satisfied with the current information resources for the neglected diseases ?
19.do you use several websites for your information regarding the neglected diseases ?
20.if yes, do you think that it would be advantageous to have all the information for the neglected diseases on a single website ?
21.do you think that a searchable database of all the vaccines is useful ?
22.do you see the need of a searchable database of all the vaccines ?
23.do you think that a searchable database of all the diagnostics for the neglected diseases is useful ?
24.Do you know what is an orphan drug ?
If yes:
25.do you think that a searchable database of all the orphan drugs is useful ?
26.do you see the need of a searchable database of all the orphan drugs ?

Thank you very much for your contribution !

ありがとうございました。

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